If I can categorize all of the "dealing with some disease or disorder" blogs into two extremes, there are the "I can climb every mountain" memoirs and then there are the "Gather heather for my hair because I wish to have a dramatic movie moment" kinda blogs.
Then there is my blog where I barely talk about my disease. I know...I need to get with the program. I really do need to start talking about all those things that I never did before like mountain climbing and how I simply must start doing them now that I have Multiple Sclerosis. Let's add on hang gliding and how about I add on lion taming just for the hell of it. Then I can make motivational speeches across the country of how I have conquered my MS and YOU CAN TOO!
Mind over matter right? And just think positive! This MS thing...why it is just a fig newton of your lively imagination. Having symptoms? Having a bad day? You slackers! Just will it away and have a bright and superduper sunny day!
On the other extreme lies the gloom and doom side. Everything is rotten. Nothing to be grateful for. The world owes me dammit! I have a disease! What? You say the world and its inhabitants don't suck eternally? Damn you to hell for negating my world view! Everyone else...they have it easy. I am alone in this uncaring world. Nobody understands my paaaaiiiiiiiiiin. I am the only one who has it this hard because I...I am so special to have all of the world's hardships and difficulties on my frail little shoulders.
"Nobody know....the trouble I've seen.....nobody knows the sorrow."
Okay so I am being a wee bit melodramatic myself here. Seriously....most blogs about dealing with health or mental challenges fall in between these two extremes. Most folks just simply write the truth of their experience as they see it. Most people who are dealing with rough times are coping day to day the best way they can. And sometimes you vascilate between the two aforementioned extremes. Sometimes a little Pollyanna doesn't hurt and sometimes you do need to vent and get it all out.
Nobody....I mean nobody...said this would be easy.
When I have my small bouts of symptoms...not being able to walk, not being able to talk, hell...not being able to think....I am reminded that...I ain't seen nothin yet. Sure...there is more to come. I know this. But I absolutely don't want to talk about this all day long. I am going to say something....possibly...offensive here but...having a disease...is dreadfully boring. If I want to keep any of my friends I cannot be sitting around talking about my MS all day. I am more than this disease.
I have MS. MS doesn't have me.
Yes I want to talk about it. That is why I have this blog. But I don't want to limit myself to just talking to other people who have MS. I refuse to barricade myself like that. It isn't healthy.
So my readers will have to excuse the fact that, while I do have a blog about MS, this site is more about.....me.
Now gather me some heather for my hair before I climb that mountain. Oh wait...maybe I will just stay here....and talk to you. Yes that is exactly what I will do.
15 comments:
It's not easy sometimes to realize that our medical condition does not define who we are. We are still our unique and interesting self. Sometimes I am confused too about myself because my thoughts and behaviours are so different depending on my mood swings. A kind friend recently reminded me that I am still me. My medical condition does not define who I am. It is just a part of me. So while I am developing my blog to share my experiences and learnings with others, I also am developing my other interest in photography, art and crafts, took on a new part-time job and enjoyed meeting friends for meals and chit chat, keep busy with emails and visiting interesting blogs. Life goes on with all the busy activities and I am enriched by each experience. Hope you enjoy your mountain climbing :-) Take care. Btw, thank God for seeing me through my first week back at work. Looking forward to some rest tomorrow. Have a good weekends. Regards, Nancie
It's my party and I'll talk to whomever I want to...
about whatever I want to...
whenever I want to...
This is YOUR space - use it as you wish. btw, did somebody really question 'what kind of ms blog is this?' Just silly.
oh no lisa...it is a question i asked myself. nobody asked it of me.
...and furthermore, not only those who have been diagnosed with ailments have the right to ail. I ask myself if I have the right to have problems if no one has told me I am owed by nature of my inordinate suffering.
The way I see it, only you can decide what,when,how,where,who about your life. It's yours. No one has done it quite like you before, and no one ever will again. And I think you know you do it well.
I mean, since you asked...
You are one very deep thinking lady and I find your blog wanderings a pleasure to read. There is no doubt this blog or any other thing you do will be whatever you decide it is to be.
I feel a bit sorry for MS as it is never going to win against you.
oh...very well then. Carry-on.
well said. i tend to not write just about ms, but there are so few places and so few people i can write/talk to about it, i tend perhaps to use the blog more to air my health issues. but thanks for reminding me how much more there is to life!
Welcome to the club... blogs are wonderful for venting and finding out that there are others who are facing similar issues as you.
Venting is always good.
You asked me in my blog about blog log? Did you mean the counter? If you did, just look at the bottom of the counter and get yourself a free counter by linking to it and set up an account for yourself.
Hugs, Jim
Found you quite by accident, dear. What a marvelously refreshing view: not whining, not being SuperPerson. Just being you. *wild applause*
Now, can you tell that to the rest of the world? *lol*
There is an age old saying that rings absolutely true in every circumstance, including MS.
"What Gets Your Attention Will Eventually Get You."
Focusing on you and not entirely MS keeps that disease from "getting you."
"I have MS. MS doesn't have me."
That's exactly it! This disease is not who you are. While it may be a part of your life don't make it your life.
rock on, i like your attitude. honest but spunky.
you have such a great attitude. And you don't let your disease define you. You are you
Where'd you find the pic?
That was used as the cover art for It's A Beautiful Day's first album.
Hiya - just calling by. Been a tad busy with all sorts of things, including being MSsy BUT am still fighting, as you do, as you know!
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