I may write a lot of fluff at times but there are some things I take damn seriously. One of the things I most value is integrity. If you talk the talk I expect you to walk the walk. I am very upfront with the fact that I do not respect those who lack integrity.
So many people want to sound good...and parrot the politically correct thing...without any substance to back up what they say. I will not judge a person by what they say but rather by what they do. It is a cliche but it still rings true, actions speak louder than words.
We are a culture of wannabe preachers and cheerleaders...rah rah-ing for causes without a real and tangible act of caring behind the words. We can easily see this in our government with the lack of legislation to support words about our supposed values. And we also see it in its simplest form, in our personal day to day lives with the people that we know.
I have surely mentioned this before but my youngest son has autism. I have spent years now talking with other parents, I have been involved with numerous support groups, and I had been deeply entrenched in the world of autism. In the world of disabilities a strange thing happens. People who should be coming together do not. Why? Because they find ways to divide themselves into camps of belief and political position. I feel this is the way for all disabilities and disorders. You go onto an autism forum and people are inevitably going to be arguing over what is the best methods for helping their child. They are going to be arguing about causes of autism. And they are going to be heatedly discussing who has the superior belief system with regards to disabilities.
And what I began to notice rather quickly was...the folks with the biggest mouths...the folks with the agendas of glorifying themselves as the best parents...were exactly those who were ignoring their kids. The child became a prop, a backdrop for someone's need to be right or to gain attention. Where was the child amongst all this debate and hooplah?
The same damn thing happens on Multiple Sclerosis forums and boards. People will divide themselves up into camps of those who use medications and those who don't. People will argue over who is handling things better. I have even seen folk argue about whether someone's else's diagnosis is real or not. It seems people will fuss and argue for just about any reason.
In the meantime flesh and blood people get lost in the shuffle. The need for hearing oneself preach and pontificate overshadows the opportunity for genuine giving of support!
I am becoming less and less inclined to listen to, become a part of, or contribute in any way of such debates brought about by folk who are lacking in the doing department. Don't preach your values...show me.
On a very personal level I have seen such hypocracy in action. I have a nameless close relative who volunteers with children who have disabilities. Isn't that nice? I am sure she gets lots of kudos and praise for doing as such. But yet this same woman refused to look at, talk to, or hug my child. This wonderful saint as she portrayed herself wasn't at all accepting of my son. The real deal was...she just wanted to look good to others.
Anonymous in her blog...Self Injecting Chinese Hamsters wrote so eloquently recently about the difference between real care and acceptance and that which is detached and possibly self serving:
"My mother has become very active in the National MS Society. In and of itself, this is clearly a noble and laudable thing. However, when lending abstract institutional support (i.e. - fundraising, attending dinners and galas, etc.) becomes a substitute for the commitment of lending concrete, individual, real-life support to one's own child, then there is something perverse---and indeed, pathological---about it. My mother can be active in the National MS Society, feel good about herself, and tell herself that she is "making a difference," all while systematically ignoring me and my very real needs. The National MS Society is both a substitute and an excuse for not helping out or caring in any practical, hands-on way."
Of course there are many ways to look at things yet I believe anonymous makes an excellent point that...we get so caught up in mouthing words, glorifying our points, and taking up causes that we neglect real people!
I will not jump on band wagons just to promote causes or to benefit someone's ego. The real heroes are not the ones with the biggest mouths or the largest minions. The people who truly make a difference and who earn my respect are those who are actively living their values. These are the quiet souls who are living in the trenches and helping others because they choose to....not to get some secondary gain for existential validation.
Th-th-that's all folks.
13 comments:
I totally agree with you. When I was on PTO for my son's school, I was honestly there for my son and his school (our community). This was my first time on the board for PTO and the first time being on it period.
BOY!!! was there so much shit going on. It was disgusting. People backstabbing eachother, looking for that Status, Looking to feel important, thinking they were important, and just being down right nasty.
And these were ADULTS! I continued to stay on PTO becaus I was doing this for MY SON...and HIS SCHOOL, but in the end people were so judgemental towards me because I stayed on and while PTO was forming a good system to help the community, in the end PTO received a bad reputation because of the SNOOTY, STUCK UP, ASS KISSING Parents! Lots of brown nosing to the Principal and these weren't even kids in school looking for a good grade.
DAMNNNNNNN!!! You go girl! I have never been so proud of you. This is the best and most "to the moral, spiritual, and physical point" message that I have EVER heard articulated. (And as the primary care-giving Dad of a marvelous young man with cerebral palsy, I have heard a truck-load of "fluff-stuff" over the years.) Well said, well intentioned, and obviously well meant! Kudos! And namaste.
I totally agree and sometimes I am thrown into an inner frenzy about all the kudos going out to shallow people.
However, I've decided that everyone has a service to provide for the larger whole. Some can give and heal on a very real, present, and personal level, while others are incapable of that level of intimacy. I believe those people often drift toward more diffuse contributions that inspire, fund-raise, vocalize, etc, in a group setting. It may suck to be around them and want any kind of warmth because they are incapable, but I see the value in their contributions.
(I'm not implying that you don't see their value, by the way.... I realize you are fair-minded and your frustration is real.)
I know just where you're coming from and have witnessed the same arguments on the MS boards. I just sat back and watched the carnage not believing that people, together in this disease, could be so vicious to each other.
I started my own message board as a result. :-)
Very nicely written! Kudos!
Sounds familiar. At TSD (Karate), I enrolled my kids and take them there every week day. Jake is borderline OCD (like me) and needs structure. I joined the class to be out there with him and give him a constant influence/example. Another parent brings her kids to practice every other day, talks a great story about getting services for her ocd child but then completely ignores the child for the entire hour. I'm underwhelmed.
Wow!! I love the way you have articulated the basic essence of Anonymous' post.
I find myself saying much more often lately - "Isn't that nice?" or "Doesn't that just make you feel all warm and fuzzy inside?" - when discussing people and their causes which don't actually help the very real people in need which are simply used in advertising or window dressing.
Hypocrisy and insincerity is rampant in many of the popular 'social causes' today. Without concrete person-to-person results, all the talk simply evaporates into hot air, much like the aromatic steam emitted from fresh bullshit.
What boils to in my own experiences is this "who profits" in the child's situation? The child or the parent?
As for having Multiple Sclerosis, one of the reasons I was holding back renewing my membership with NMSS. People who live with chronic illness or daily physical pain often feel as though no one understands what they are going through. Yet, they promote and raise money which can make anyone feels good. Too often those with invisible and visible disabilities are forgotten or their handicaps are taken too lightly. Hypocrites we are however we CAN Be on the way to liberation even from our own hypocrisy. But how?
Everyone got their own agendas on dealing with disabilities regardless how those who are living in disabilities feels about it or not.
I hear what you are saying and I agree with you for the most part. I would like to point out though that there are people who are needed to do that kind of thing.
I volunteer at the Red Cross. Since I don't respond to disasters, hand out cookies to those who donate blood, but do clerical work instead; does that make what I do less valuable? Since I am not "hands on" does it really mean I'm just looking for an ego boost?
absolutely not whimsy. i have been a volunteer as well for many things...behind the scenes...doing less than glamorous and non hands on stuff...this isn't what i am talking about at all. i am talking about those who use causes to look good...who do things for the ego instead of demonstrating actual care.
whimsy, the clerical behind-the-scenes gruntwork IS the stuff which should be honored. You are actually going the work which will ALLOW for programs to function.
Here here, clap clap and a big hug to all who actually help another face to face
'Don't preach your values...show me.'
I wish more people had your integrity.
Untill having a pc, i really didnt know there was such a divide out there, some of which i am quite shocked by.
You've picked a biggy there... Integrity is a massive one.
even someone who leads by their actions - sometimes you later see that actually underneath their real intentions were far from honourable and what ever they did goes from being something to admire and aspire to to being something that is to be despised.
A close colleague, my old boss actually, who I'd worked with closely for some years wrote in a review of me - "he displays the greatest integrity of anyone I've worked with in this team" One of the most humbling comments I've ever received.
Post a Comment