Thursday, April 3, 2008

not a virus

I don't have a virus. I knew I didn't have a virus.

I was vomiting yesterday because I was in such extreme pain in my abdomen. I guess I didn't communicate that well to the doctor's office to get the response from the nurse on the phone of..."Oh yeah...there is a virus going around making people vomit. You will have diarreah next."

Me: "But I have been bleeding and nobody else here has a virus. I have no other symptoms of a virus."

I suppose I am being deemed as the hysterical woman who doesn't know what she has.

"Drink lots of fluids."

Me: "Are you sure none of this could be related to fibroids or my ovarian cyst?"

Nurse: "I get cysts every month and no they don't do this. Are you worried about your cyst honey? Maybe you could talk to the doctor about it."

So later the doctor calls to tell me that I have a virus.

Remembering the stories of some of my female friends and their gynecological adventures...it is not unheard of to be very sick before the onset of a bad period. Some women vomit...some even pass out.

This is just what a lot of women deal with on an on-going basis.

Women get used to having their physical problems dismissed by medical professionals and so they begin to dismiss them as well. Many women suffer needlessly because their symptoms are either attributed to unrelated causes or told that they are normal for the diagnosis and just to live with it.

I have had friends who were so anemic from blood loss that they were on the verge of collapse, but were told that this was normal for having uterine fibroids. I will not allow this to happen to me.

Lessons learned thus far:

1. Doctors don't know everything. You present symptoms. They diagnose ( make a best guess at what is wrong). It seems to me from my experience that doctors seldom go beyond stating the diagnosis such as "You have MS" or "You have fibroids" to tell you what the diagnosis means in everyday language. They do not tell you what to expect.

2. I knew what was wrong with me in almost every situation requiring a doctor's tests to confirm what I already knew. How did I know? See # 3 and #4.

3. Thank God for the Internet. As much as folks are warned to staying away from it for researching medical problems, it has been one of my greatest resources of information.

4. Talking to people who have had similar symptoms almost always yields the answer in the end.

5. There has to be some balance between what your intuition tells you, listening to other's stories, researching, expert opinion and diagnosis, and the science of testing procedures.

6. As far as your own health care, YOU are your own best advocate.

Yes you have to be careful to weed out irrelevant information. Yes you have to use common sense. Yes you have to have some trust in the medical community. But mostly you have to trust yourself to know when something just ain't right.

And my gut is screaming at me right now.

10 comments:

Anonymous said...

Working in the medical field (as, I'm told, what most marketers call "a window witch") I've learned nothing so firmly as the fact that doctors don't know jack other than how to stay in school longer than anyone else. *g*

Here's hoping things improve markedly for you. *hugs*

laughingwolf said...

dang! hope you DO get the proper diagnosis and relief, asap!

Unknown said...

Most doctors including my doctors admit that they don't know anything but they do mention that "communication" is the key to explain how your body is feeling. They will do the best as they can based on what we tell them.

I have been seeing my doctor for years now and we have established a communication now. This doctor is a woman and she gives me one of those "look" when I am not following orders. LOL

I hope you are feeling better and thinking of you.

Hugs, Jim

mdmhvonpa said...

Shortcut doctors drive me bonkers.

whimsical brainpan said...

Most people tend to forget thet the doctor works for them, and that MD does not stand for Major Diety.

Feel better soon hon.

(((HUGS)))

Diane J Standiford said...

Ok, what the heck TYPE of doctor are you seeing??!! No one has said, ENDOMETRIOSIS? Your symptoms seem typical for burst ovarian cysts, internal endometrial bleeding, Merelyme, YOU DO NOT have to live like this! Are you hearing me?? I lived this. My partner lived this. You seem to keep doing th same thing over and over and hoping for a different outcome. I've had EMS medics tell me, "My wife goes through same thing during her periods, it will pass." NO! I had cancer. CANCER. Partner left her endometrial bleeding go on so long, it was too severe to EVER be fixed, she suffers 20yrs later! (And had total hyterectomy, removed as many edometrial pockets as possible, bt they start to grow throughout your body. You must get a diagnosis. Don't make the mitakes we did.

Synchronicity said...

diane...i really want to hear all the details of your story. i am guessing endemitriosis sounds quite plausible for me.

and thanks to all of you for the support.

i am going to have a repeat sonogram at the end of the month so this is good. and today (keeping fingers crossed) i am feeling better.

laughingwolf said...

good to hear, and keep on the wellness path! :)

Anonymous said...

Well said. One of the hardest lessons I had to learn in dealing with a chronic pain condition is that I have to be my own case manager, and that requires ongoing vigilance and self-advocacy.

Blinders Off said...

It is good to hear you are feeling better.

Diane is right you do not have to live like that. I lived like that before my hysterectomy.

I mention on a different post to you, that a hysterectomy is not the end of life it is the beginning of life without what you are experiencing now. If you do not plan on having anymore children...you might want to request your doctors perform the surgery. Remember, they make more money by having you continue to come in, when a surgery could stop all that if its fibroids or endometriosis.