after much deliberation i have come to some conclusions about the things i have to decide upon.
i think one of the hardest things to deal with about decision making is that we don't want to feel trapped or locked in. we need room to change things if need be.
this is why i have decided NOT to take zoloft. i researched it, looked at all the side effects, and came to the conclusion that it can be a very difficult drug to tolerate. it also is one which is hard to get weaned off. if i made the decision to try it, i would have to be committed to taking it for some time. i read case after case of people talking about how hard this particular drug was upon their system and how they sometimes acquired new symptoms upon stopping it. no.
i like the idea of starting with the least amount of side effects and potential harm but also having the most benefits. i do like natural remedies.
this will all be a process of figuring out what works best for me.
i am gonna try SAM-e first. and then i am gonna try st. john's wort as a back up if the first doesn't work. i am also going to do everything in my power to stay mentally healthy and keep my mood up. i am going to exercise. i am going to join a support group. i am going to get a counselor specializing in health issues.
the good thing about hitting the bottom is that there is nowhere else to go but up. i realize there are bottoms and there are deeper wells to fall into but...i am not going to fall anymore. it is time for me to take responsibility for my biologically induced moods.
if the natural ways do not work...then i will research again about an anti-depressant which makes sense for me.
now the biggie...
the rebif. dear lord...the company is already calling and wanting to be of assistance. i feel like the patron of a store where the salespeople are frothing at the mouth to come and "assist" you as you slowly walk backwards towards the door so you can run as soon as your foot nears the exit.
no.
not ready.
my MS is slow moving. i have no new lesions. they have not grown in size. i have none on my spine. i want to wait. i see no danger waiting until at least...i have another true episode.
i have been reading and researching for months. this is what i do best. i am not entering this blindly. i have read what many people have said about their experiences. i have looked at the studies.
when i do take the rebif...and i am fairly sure that i will take it or one of the other meds in the future...i want to be committed to the process. i will have to be. i will have to believe that what i am doing is going to be good for me.
some of the rebif stats from their own company literature seem good. but some...i wonder how they can justify the cost of this drug which lacks much efficacy.
for example...this stat does not seem very promising to me: "Prims 2-year data: Rebif is proven to significantly slow the progression of MS. 74% of people taking Rebif 44 mcg had no disease progression at 2 years vs 63% of patients taking placebo."
so basically well more than half of folks who do not take meds will not progress with their MS within two years. and then there are the folks who WILL progress no matter if they are on rebif or not.
there is a lot to digest. stats only tell part of the picture. stats are not gonna talk about the long term effects of these drugs as this is unknown at this time. stats are not going to talk about quality of life. stats do not address the unique challenges each person having MS has to face in addition to his or her disease.
logic and reasoning aside...this is more than a scientific matter...this is a personal gut decision.
i will undoubtedly try rebif. but it does not make sense to me to do it now.
i will wait.
17 comments:
It's good you do lots of research. MS is a strange disease, it causes different reactions in every person.
I think once you get to know the disease that is in your body, and how your body will react to it, then your adjustment will be much better.
merelyme, it sounds as if the research has lead you to make decisions that are exactly right for you at this particular point in time.
xoxo
I'm glad you've come to a decision and have a plan. It sounds like a good plan, too, well thought out and very rational. Unpleasant as it will be for you, you will be successful because you are in charge. The hard part is sticking with a plan sometimes, but we are here to encourage you on your journey.
thank you so much for your comments and support. this has not been easy but i feel good in how i am responding in a fairly rational manner. i need to keep my wits about me.
Glad to see you are doing well.
Stick with your plan, but don't be afraid to change if you have to.
I was terrified of getting on the lexapro pony, but it worked wonders.
Of course I got yanked off suddenly, but still good to go.
Do what YOU are comfortable with.
We will all love you no matter what.
I'm glad you have come to a decision. I know you've been thinking about this for a long time.
The only reason I even have a life worth living is because of a medicine. A simple little white pill called bromocriptine made all the difference, but it took 10 years of agonizing pain and being to the brink of suicide before I eventually found a diagnosis and cause of my cluster heaadaches.
After lots of researching, i feel you are right to go with your gut feelings.
The really great thing about making decisions like this is:
1) it feels good to have some peace of mind after all that thinking and researching, AND
2) if at some point in the future, you feel that it was not the right way to go, you can always change your mind!
Just remember that whatever drug, herb, or supplement you decide to take, you have to give it some time (say 3 months or so) to see if it is making a positive difference in your body.
If it is making you sick in the first week, I would chuck it. LOL
Anne
I commend you for taking the stance you have. Your determination reminds me of my ex and I always admired her guts, and have told her many times, even since our break up. Her MS, by the way, was not the reason we parted. And, she's still doing OK and I still love her for her demand that she must be true to herself -- just like you.
She also did St. John's Wort and Evening Primrose and found them helpful.
Check out Stu's Views and MS related news about Prozac blog dated 10/24/07. The article dateline is 10/16/07.
http://www.msviewsandrelatednews.com/blog5/
Very interesting results.
Anne
You have to do what feels right to YOU. Everyone is different, every MS patient is different. You've done your research, you have a well thought out plan, and that's great. I'll say that it is a journey though, be prepared to be flexible with your plans.
thank you so much for all your support and comments...i did just look at the article about prozac...that was really interesting.
I think the "gut" has the best instincts...unless, of course, for one reason or another you are starving it and develop hunger pangs. Then, it's not so reliable. Tough decisions...sounds like you feel comfortable with them, which is the most important part.
Linda D. in Seattle
You certainly have done the research which has given you pause. You have to go with your gut. I am hoping you share your journey with us as you try alternative methods to maximize your health and wish you the best of luck.
This is totally off-topic, but I've been impelled to propagate THIS meme and I'm picking you, merelyme.
Forgive me.
No new lesions ... much happiness!
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