Saturday, July 21, 2007

looking for links!

If you know anyone who is currently blogging about MS...let me know. I would like to add their link to my fodder here.

How many people in the world have MS anyway? What are the stats?

What made you decide to blog about Multiple Sclerosis?

6 comments:

Unknown said...

I blog about MS at http://electrical-disturbance.net/ . This is actually a link to a blogspot blog right now, but if you add a link to me, I think the .net address is the best one to use.

I decided to blog about MS after my mother suggested that it might help me process the whole experience and, who knows? might help some other people too.

mdmhvonpa said...

Live Journal has a load of ppl who blog too : http://community.livejournal.com/ms_support/

the aspiring optimist said...

I decided to start blogging about MS because I find it a difficult subject to talk to friends about, but I really needed some sort of outlet.

I also like readed other MSers blogs, because it's always useful to get a different perspective on what's happening.

Anonymous said...

I'm more of a blogger who blogs about other things (mostly trivial) and occasionally opens up the vault and blogs about my MS. I do like to be included in the world of MS bloggers though, and am pleased that you somehow found me (through 'White Lightning Axiom' or 'Living w/Muttin/Jeff * Multiple Sclerosis, and who knows how they found me originally..?) because I enjoy reading your blog (even though my popping in to read it is random)
-The Pincushion

Bubbie said...

I'm new to Blogging. I'm still learning how to put my pages together.This is all new to me, But I do have MS, read MS bloggers and belong to an online support group. I initially said that I would not journal about my MS. I sometimes feel that it (the disease) is taking too much of my focus and energy. I'm trying to direct my attention on other facets of life. Maybe that's a coping mechanism. I plan though to continue to post links about MS awareness and research at least. And of course I'm sure there will be days when it slaps me down again and I'll vent too.
Treatment options is something I plan to write about since I have read horror stories about the one that was suggested recently by my neuro. I've found that the support of others and sharing knowlege about our care options is preferred to having blind faith in the medical community.

Anonymous said...

Hi, I'm new to blogging. It is a new toy and that's why I started it. I write for local newspapers on disability issues. I was dx in 1976 by the ancient CAT Scan machine, so I have had RRMS for 31 years. This month, I started a blogger at http://disablednotdead-anne.blogspot.com

I linked up with Feedburner, I'm still learning and would appreciate a link from your site as well. I try to read yours at least twice a week and I can certainly sympathize with a lot of your feelings. Thank you for your down to earth writings about how you are doing. So many of us with RRMS tend to put on a good face and this venue allows us to be more truthful in a kind of anonymous way. Something like "talking to a stranger on the bus about things you would never talk about to a friend."

Looking forward to hearing from anyone who finds me through your link. Thank you, Anne