emotions seem like stunt doubles. oookay...emotion needed here. bring in the adrenaline. should we go for fear or anger this time? how about tears. no let's try inappropriate laughter instead. what would work best for this scene?
imagine this...
you are out and about seemingly enjoying a lovely summer day. the heat seems tolerable but actually it is frying your brain with each minute you are out in it. one minute you are smiling, carefree, examining bugs under a magnifying glass with your child. and the next...you find that one of your legs won't work right. it is so stiff you have to hobble. after the leg, the arm goes next and especially your hand. you find it is weak and you can't quite grasp things well. you finally understand that you need to get out of the heat and fast. by then it is too late. you get into the furnace of a car that has been sitting in the sun all day. your vision is next to go. you reach for the car door and see double. even the air conditioning is too late. you are like the scarecrow from the wizard of oz where assorted body parts fall to the road side. you scramble to keep your stuffing intact but it is of no use.
it is incomprehensible that anything else would go. that is when your ability to talk suddenly leaves you. the words pile up in your mouth like an over burgeoning closet. your tongue is thick and stupid and lies there. you hesitate and stammer like a drunk on a bender. the words slur out of your mouth for all to hear and view your disability.
all because of a few hours of sunshine.
Come sit a spell and shoot the breeze. Sweeten the day with a little synchronicity...
5 comments:
Hugs
D. XXX
No, not all because of a few hours sunshine...more like, all because you have MS and were out in the sunshine. Which is stating the obvious without wishing to be patronising.
It is hard to give up the normal enjoyments of life but if you take some sunshade (a parasol?), limit the time right in the sun, drink plenty of cold water, sit down...now I am lecturing when all I want to say is that we have to adapt even though we want to seem 'normal'. Don't give up, just adjust things until the comfort zone is found and not breeched.
But it IS hard and unfair and you won't always get it right after several years 'experience'. We will soon be travelling several hundred miles in the car. It has air-con and we'll stop often, but I still know it will wipe me out. And I won't even be driving, just sitting still in the wrong position for the wrong amount of time. If I don't, I won't see my stepson getting married.
I'll just be doing my best to cope.
Been there ... sorry you were all alone with the little one. That makes it quite a bit more scary, eh?
i am so very sorry..
I've said it before and I'll say it again..."that just sucks". Did your symptoms eventually resolve once you cooled down?
Re-establishing how to "be" in the world with MS takes some time and patience...I still forget and/or struggle with variables. Unfortunately, if I FORGET my MS, it will always remind me it is there.
Be safe,
Linda D. in Seattle
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